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If there is a diagnosis or strong suspicion of a gynecologic (female or women's) cancer, immediately go find a board certified gynecologic oncologist.
This is a gynecologist who has undergone years of extra training and
examinations to become board certified in the care of women with
gynecologic cancers. This includes performing surgery, giving
chemotherapy and recommending whether or not radiation is required.
Note that radiation is rarely used in ovarian cancer treatment.
A
board eligible oncologist who has completed fellowship training is an
option as well. This means they have completed training, but are
required to practice a few years before being allowed to take the final
board certification exam. These energetic, recently trained oncologists
are usually in practice with more senior physicians so you will often
receive team based care in such private or University practices.
If
you are under the care of a gynecologic oncologist who does not inspire
confidence or does not present some kind of positive outlook, go find
another one. This is not to say that they should be painting a rose
garden picture. However, it is reasonable to expect your main physician
to be objective but encouraging if at all possible. The treatment is
hard and the outcome may not always be the best, but you do have a
fighting chance and you should feel that your gynecologic oncologist is
in your corner, providing personal attention and state-of-the-art
information throughout.
Do not let anyone,
including friends, family physicians, general gynecologists, surgical
oncologists, medical oncologists, or any other doctor convince you that
their team is just as good in the absence of a gynecologic oncologist.
You absolutely, positively need a gynecologic oncologist as part of
your team!! Again, do not let anyone convince you otherwise.
You can find help and a list of gynecologic oncologists in your area at www.sgo.org (Society of Gynecologic Oncologists) or www.wcn.org
(Womens Cancer Network). To my knowledge there is no comprehensive and
accurate international directory. However, you might try contacting the
International Gynecologic Cancer Society at www.igcs.org, who may be able to help you find a gynecologic oncologist in your country.
Your gynecologic oncologist may or may not work closely with a medical oncologist instead
of administering chemotherapy his/her-self. A medical oncologist is a
doctor who specializes in giving chemotherapy to patients with all
different types of cancer, gynecologic or not. Most do not see as many
patients with ovarian cancer as a gynecologic oncologist, but can be
very important members of a team approach in treating your cancer. In
centers or medical groups where treatment is regularly delivered by a
multi-disciplinary team, medical oncologists play a critical role in
administering the chemotherapy, working in conjunction with a
gynecologic oncologist.
Who else do you need? First of all, don't forget that YOU
are a team member! The doctors you work with will give you options,
opinion, information, treat you etc., but you must be an active
decision-maker because we are talking about YOUR body here. You also
have to be aware of what to look for in how your body responds, so that
you can relay that information to your doctor(s). They cannot guess
what might be going on with you. Make sure that you feel comfortable
with your doctors. You should be able to ask questions, and relay fears
and concerns.
When you visit your doctor(s), make sure you have
all your questions lined up and write them down if you need to in order
to stay organized. Some doctors will let you record your visits, others
will prefer that you don't. An alternative is to bring a family member
or friend to help you hear everything.
Other members of the team might include:
Primary Care Doctor
- Your Primary Care Doctor is hopefully the one you already know and
trust for your basic medical care. Usually, this doctor is a Family
Practitioner by training, but may be an Internal Medicine doctor or a
Gynecologist. They will often stay involved to take care of your health
beyond that of cancer care and help in situations where medical
management is required around the time of surgery.
Surgical Oncologist
- Surgical oncologists are surgeons who spend extra years training to
surgically take care of cancer patients. They are not a substitute for
a gynecologic oncologist, but may be very helpful when your surgical
needs go beyond that of a gynecologic oncologist. For example, while
gynecologic oncologists are trained to perform surgery in many areas of
the body, a surgical oncologist may be involved when a large part of
the liver needs to be removed or chest surgery needs to be done.
Nurse Practitioner -
Nurse-practitioners are nurses who have gone beyond the basic RN degree
and received extra training in healthcare. They may assist your doctors
by performing examinations on you and may or may not be authorized to
write prescriptions for medications you need. This depends upon the
State you live in.
Oncology Nurse - Oncology
nurses are RNs who have specialized, and are often specifically
certified in, cancer care. Most often you may have oncology nurses
helping administer chemotherapy to you; something that they are
specially certified to do.
Social Worker -
Licensed social workers are your connection to broad range of support
networks in your medical facility and surrounding community. Social
workers may intervene by providing individual, couple, or family
counseling, offering group education or support, and by working with
community groups in the development of resources to assist patients in
meeting their own needs.
A psychosocial assessment provides the
basis for the social worker intervention. This assessment includes
evaluation of patient resources, strengths, and support systems, such
as:
- past coping behaviors
- family support
- living arrangements
- education level
- employment
- leisure interests
- financial situation
The
social worker also addresses the patient's emotional
reaction to the illness, the impact of the disease upon the family, the
effect on the patient's relationships and roles, and other personal or
social problems.
Alternative or Complementary Practitioners
- Many centers have integrative medicine programs, or have at least
some practitioners who represent alternative and complementary
approaches to cancer care. The most proven options are those which help
control your symptoms, help support your strength and possibly your
immune system. These practitioners may have various degrees including
PhD, naturopathy(ND), chiropractic (DC), or may have no degrees but
with extensive experience in massage therapy, music therapy or
accupuncture/accupressure. Rather than shopping for unknown
practitioners with uncertain skills, the best strategy is to ask for a
referral from an enlightened mainstream medicine practitioner. There is
a lot of misinformation and misguided people out there, whose advice
can harm you and cause you to lose your best chance of a cure.
Finally,
the following are some general questions you might want to consider in
setting up your team and selecting your main physicians.
- Are you fellowship trained and board certified or board eligible?
- Who will be my main doctor in coordinating treatment?
- Do you believe in discussing options with me, including possible research alternatives?
- If I have problems during treatment who do I call and how do I reach them? Is this the same on weekends?
- What costs are covered by my insurance and who do I talk with about this?
- What kind of support services are available to me and where do I find them?
- If
you are interested in complementary and natural aids, you may want to
ask if your doctor would be willing to consider or discuss
complementary and alternative options, or refer to a colleague who can.
To your victory!!
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